On Saturday July 11th, Austin was released from Riley and is now back at home!! Between our July 3rd update and July 7th, Austin had more tests and surgery as a result of some other findings.
Urinary Tract Infection
As noted in a prior update, Austin has been treated for an infection while he was in Riley. The doctors ran a few more tests to look at the overall physiology of his bladder and his tract to try and determine why had an infection. Some anomalies were discovered with the overall development of the physical shape and texture. Further appointments and tests will be administered in the future as an outpatient with urology to try to prevent any future infections or issues.
Bronchoscopy
On July 8th, the doctors attempted to perform a bronchoscopy, which is a procedure that looks at the airway, throat and lungs. Due to Austin's heavy breathing rate and heavy wheezing, the doctors wanted to see if this procedure would identify anything obstructing or preventing normal air flow. The procedure involves the use of a camera and a light that is inserted through the nose or mouth and looks at the throat, larynx, vocal cords and lungs.
As they conducted this procedure, it could not be complete due to an obstruction identified just above the vocal cords. Austins throat was partially webbed together that needed to be operated on. Although the webbing was not significant, it would have some effect on air flow. Early on the morning of July 9th, Austin had surgery to have the webbing cut and treated and the doctors were able to complete the bronchoscopy by looking further down Austins airway to the lungs. Outside of the webbing that was treated, the rest of his airway looked to be normal with the exception of some floppiness and softness of the throat tissue near the larynx. This is expected to get better in time, but will be monitored.
Austin's Home
We were very pleased to be able to bring our son home on July 11th. Austin is on a monitor at home that tracks his breathing and heart rate. This monitor is considered highly precautionary, but gives us a lot of piece of mind. Austin is now on approximately 7 new medications that are administered through his gastric feedings. We have multiple follow up appointments at Riley over the next couple months to ensure some of the findings identified this past couple weeks are appropriately monitored.
Since Austin's latest trip to Riley, we have noticed Austin appears to be smiling more and it is such a wonderful sight to see. We can only imagine he is much happier to be in the comfort of our home. We will start back up with his therapy appointment next week and hopefully will get back in a normal routine!!! Thanks for all the continuous thoughts and prayers and although Austin can't tell you, he really appreciates it!!
Urinary Tract Infection
As noted in a prior update, Austin has been treated for an infection while he was in Riley. The doctors ran a few more tests to look at the overall physiology of his bladder and his tract to try and determine why had an infection. Some anomalies were discovered with the overall development of the physical shape and texture. Further appointments and tests will be administered in the future as an outpatient with urology to try to prevent any future infections or issues.
Bronchoscopy
On July 8th, the doctors attempted to perform a bronchoscopy, which is a procedure that looks at the airway, throat and lungs. Due to Austin's heavy breathing rate and heavy wheezing, the doctors wanted to see if this procedure would identify anything obstructing or preventing normal air flow. The procedure involves the use of a camera and a light that is inserted through the nose or mouth and looks at the throat, larynx, vocal cords and lungs.
As they conducted this procedure, it could not be complete due to an obstruction identified just above the vocal cords. Austins throat was partially webbed together that needed to be operated on. Although the webbing was not significant, it would have some effect on air flow. Early on the morning of July 9th, Austin had surgery to have the webbing cut and treated and the doctors were able to complete the bronchoscopy by looking further down Austins airway to the lungs. Outside of the webbing that was treated, the rest of his airway looked to be normal with the exception of some floppiness and softness of the throat tissue near the larynx. This is expected to get better in time, but will be monitored.
Austin's Home
We were very pleased to be able to bring our son home on July 11th. Austin is on a monitor at home that tracks his breathing and heart rate. This monitor is considered highly precautionary, but gives us a lot of piece of mind. Austin is now on approximately 7 new medications that are administered through his gastric feedings. We have multiple follow up appointments at Riley over the next couple months to ensure some of the findings identified this past couple weeks are appropriately monitored.
Since Austin's latest trip to Riley, we have noticed Austin appears to be smiling more and it is such a wonderful sight to see. We can only imagine he is much happier to be in the comfort of our home. We will start back up with his therapy appointment next week and hopefully will get back in a normal routine!!! Thanks for all the continuous thoughts and prayers and although Austin can't tell you, he really appreciates it!!
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